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About Us

It is difficult to say what is impossible, for the dream of yesterday is the hope of today and the reality of tomorrow.” – Robert H. Goddard

About US

The MND Trust, under Dr. Shyama Narang Foundation, is Registered as a Trust in December 2020. The trust has been formed with a view to support people affected by Motor Neurone Disease.

Registry for MND patients

Our Vision for MND Trust is to advance excellence in the care and support for people with Motor Neurone Disease (MND) and to promote a coordinated research community dedicated to finding a cure for MND.

Our Mission is to develop a state-of-the-art diagnostic center in Bengaluru, India for early diagnosis of MND. To provide quality physical infrastructure for rehabilitation, education and training for people with MND, their families and caregivers and to help them to cope with the disease with confidence and courage while sharing with them new techniques and education for the management and treatment of the disease. 

about-mndtrust

The Trust will aim to provide support and care in the following manner:

  • We will provide information about MND and support available.
  • Give you advice applicable to individual situations.
  • Helping you to understand the disease, identify and access services you may need now and in the future.
  • Providing information and support to health professionals in India. (Though we are yet to prepare a directory of neurologists across the country, we could probably give a lead whom to contact).
  • We will give professional help to answer your queries and respond to your queries as quickly as possible.
  • We will maintain confidentiality at all times and ensure your data is protected.
  • You are encouraged to send your feedback , which will help us to improve our services.

Dr. Alexander Thomas | President, AHPI

As President of AHPI and National Board Accredited Institutions (ANBAI), Founder-President (2012-2017) and Patron of the Consortium of Accredited Healthcare Organizations (CAHO), Dr. Thomas has effected far-reaching policy changes within the healthcare landscape, including incorporating healthcare communication among the NABH accreditation standards and in the Indian medical curricula, leading the expert group on medical education for the National Education Policy 2019 headed by Dr. Kasturirangan, and creating a national network of healthcare associations with the IMA, CII, FICCI , NATHEALTH and ASSOCHAM, a think tank on health (with NLSUI), and liaising between government and health stakeholders during the COVID-19 pandemic.

He has developed major initiatives at the State level, especially in Karnataka, and served on committees of the Union Health Ministry, NABH, HSSC, CII, FICCI, UNESCO, PHFI, and NBE.

He is a Visiting Faculty at IIM-B and NLSIU, pioneering several healthcare training initiatives.

His recent publications include books on healthcare communication and healthcare quality, and white papers submitted to the Government of India.

He was awarded the Emeritus Teacher Award by NBE (2014), the National Distinguished Services Award by the IMA (2016), and the Lifetime Achievement Award by CAHO (2018).

AHPI Founders page:

AHPI India

Online biodata:

Dr. Alexander Thomas President, AHPI

LinkedIn:

Dr. Alexander Thomas – President – Association of Healthcare Providers – AHPI (India)

Zoom Link:

NIMHANS & Dr. Shyama Narang Foundation is inviting you to a scheduled Zoom meeting.

Topic: Second International Conference on ALS/MND – “Breaking Barriers in the Treatment of MND/ALS”
Time: Jun 21st & 22nd 2023 09:15 AM India

Join Zoom Meeting
https://nimhans-ac-in.zoom.us/j/82508494791?pwd=RDhUWUxlRFo4b0dBbGNjcjBXWk84UT09

Meeting ID: 825 0849 4791
Passcode: 626500

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Meeting ID: 825 0849 4791
Passcode: 626500