Skip to content

About Us

It is difficult to say what is impossible, for the dream of yesterday is the hope of today and the reality of tomorrow.” – Robert H. Goddard

About US

The MND Trust, under Dr. Shyama Narang Foundation, is Registered as a Trust in December 2020. The trust has been formed with a view to support people affected by Motor Neurone Disease.

Registry for MND patients

Our Vision for MND Trust is to advance excellence in the care and support for people with Motor Neurone Disease (MND) and to promote a coordinated research community dedicated to finding a cure for MND.

Our Mission is to develop a state-of-the-art diagnostic center in Bengaluru, India for early diagnosis of MND. To provide quality physical infrastructure for rehabilitation, education and training for people with MND, their families and caregivers and to help them to cope with the disease with confidence and courage while sharing with them new techniques and education for the management and treatment of the disease. 

about-mndtrust

The Trust will aim to provide support and care in the following manner:

  • We will provide information about MND and support available.
  • Give you advice applicable to individual situations.
  • Helping you to understand the disease, identify and access services you may need now and in the future.
  • Providing information and support to health professionals in India. (Though we are yet to prepare a directory of neurologists across the country, we could probably give a lead whom to contact).
  • We will give professional help to answer your queries and respond to your queries as quickly as possible.
  • We will maintain confidentiality at all times and ensure your data is protected.
  • You are encouraged to send your feedback , which will help us to improve our services.

Dr. Alexander Thomas | President, AHPI

As President of AHPI and National Board Accredited Institutions (ANBAI), Founder-President (2012-2017) and Patron of the Consortium of Accredited Healthcare Organizations (CAHO), Dr. Thomas has effected far-reaching policy changes within the healthcare landscape, including incorporating healthcare communication among the NABH accreditation standards and in the Indian medical curricula, leading the expert group on medical education for the National Education Policy 2019 headed by Dr. Kasturirangan, and creating a national network of healthcare associations with the IMA, CII, FICCI , NATHEALTH and ASSOCHAM, a think tank on health (with NLSUI), and liaising between government and health stakeholders during the COVID-19 pandemic.

He has developed major initiatives at the State level, especially in Karnataka, and served on committees of the Union Health Ministry, NABH, HSSC, CII, FICCI, UNESCO, PHFI, and NBE.

He is a Visiting Faculty at IIM-B and NLSIU, pioneering several healthcare training initiatives.

His recent publications include books on healthcare communication and healthcare quality, and white papers submitted to the Government of India.

He was awarded the Emeritus Teacher Award by NBE (2014), the National Distinguished Services Award by the IMA (2016), and the Lifetime Achievement Award by CAHO (2018).

AHPI Founders page:

AHPI India

Online biodata:

Dr. Alexander Thomas President, AHPI

LinkedIn:

Dr. Alexander Thomas – President – Association of Healthcare Providers – AHPI (India)

Zoom Link:

NIMHANS & Dr. Shyama Narang Foundation is inviting you to a scheduled Zoom meeting.

Topic: Second International Conference on ALS/MND – “Breaking Barriers in the Treatment of MND/ALS”
Time: Jun 21st & 22nd 2023 09:15 AM India

Join Zoom Meeting
https://nimhans-ac-in.zoom.us/j/82508494791?pwd=RDhUWUxlRFo4b0dBbGNjcjBXWk84UT09

Meeting ID: 825 0849 4791
Passcode: 626500

One tap mobile
+17207072699,,82508494791#,,,,*626500# US (Denver)
+12532050468,,82508494791#,,,,*626500# US

Dial by your location
• +1 720 707 2699 US (Denver)
• +1 253 205 0468 US
• +1 253 215 8782 US (Tacoma)
• +1 301 715 8592 US (Washington DC)
• +1 305 224 1968 US
• +1 309 205 3325 US
• +1 312 626 6799 US (Chicago)
• +1 346 248 7799 US (Houston)
• +1 360 209 5623 US
• +1 386 347 5053 US
• +1 507 473 4847 US
• +1 564 217 2000 US
• +1 646 558 8656 US (New York)
• +1 646 931 3860 US
• +1 669 444 9171 US
• +1 689 278 1000 US
• +1 719 359 4580 US

Meeting ID: 825 0849 4791
Passcode: 626500

Find your local number: https://nimhans-ac-in.zoom.us/u/kbZQ2TYAEJ
————–
Join by SIP
• 82508494791@zoomcrc.com
————–
Join by H.323
• 162.255.37.11 (US West)
• 162.255.36.11 (US East)
• 115.114.131.7 (India Mumbai)
• 115.114.115.7 (India Hyderabad)
• 213.19.144.110 (Amsterdam Netherlands)
• 213.244.140.110 (Germany)
• 103.122.166.55 (Australia Sydney)
• 103.122.167.55 (Australia Melbourne)
• 149.137.40.110 (Singapore)
• 64.211.144.160 (Brazil)
• 149.137.68.253 (Mexico)
• 69.174.57.160 (Canada Toronto)
• 65.39.152.160 (Canada Vancouver)
• 207.226.132.110 (Japan Tokyo)
• 149.137.24.110 (Japan Osaka)

Meeting ID: 825 0849 4791
Passcode: 626500

Zoom Link:

Dr. Shyama Narang Foundation Conference on Awareness, Care, and Management of Motor Neuron Disease 2024 is inviting you to a scheduled Zoom meeting.

Topic: My Meeting Dr. Shyama Narang Foundation Conference on Awareness, Care, and Management of Motor Neuron Disease 2024

Time: Jun 26, 2024 09:30 AM India

Join Zoom Meeting
https://us06web.zoom.us/j/88601403765?pwd=e3bEBam2wiECJ8A6bV9gu8KKENL6uQ.1

Meeting ID: 886 0140 3765
Passcode: 2024

One tap mobile
+16694449171,,88601403765#,,,,*2024# US
+16699006833,,88601403765#,,,,*2024# US (San Jose)

Dial by your location
* +1 669 444 9171 US
* +1 669 900 6833 US (San Jose)
* +1 689 278 1000 US
* +1 719 359 4580 US
* +1 929 205 6099 US (New York)
* +1 253 205 0468 US
* +1 253 215 8782 US (Tacoma)
* +1 301 715 8592 US (Washington DC)
* +1 305 224 1968 US
* +1 309 205 3325 US
* +1 312 626 6799 US (Chicago)
* +1 346 248 7799 US (Houston)
* +1 360 209 5623 US
* +1 386 347 5053 US
* +1 507 473 4847 US
* +1 564 217 2000 US
* +1 646 931 3860 US

Meeting ID: 886 0140 3765
Passcode: 2024

Find your local number: https://us06web.zoom.us/u/kevcLGKACH