These pointers have been written using the following pdf by Motor Neuron Disease New Zealand. Please do give it a read if you would like more information on the same.

There is an element of planning required for caregiving. Not only will they have to foresee the progression of the disease and the needs that arise with it, but sharing responsibilities is also vital. This reduces the over-reliance on a single person. However, it is important that all the primary caregivers are involved as early as possible as it will be a learning curve for them and they will become better experienced over time. Sharing and dividing responsibilities can also reduce the stress on the carer- especially if they are an older person. Many caregivers deal with “burnout” where they get emotionally exhausted and physically drained. Thus, self-care is important for the carer with adequate breaks. This division of responsibilities can be achieved through friends and family. Having someone help out with household chores once in a while or in cooking meals etc. can help ease the burden on the  caregiver.