About Us
What is MND?
FAQs give clear answers on MND symptoms, diagnosis, treatments, support, and clinical trial opportunities.
Motor Neuron Disease (MND) affects the nerves that carry signals from the brain to the muscles. Over time, these nerves stop working properly, causing muscle weakness, stiffness, and difficulty with movement, speaking, swallowing, and breathing. Each person experiences the disease differently.
Currently, there is no cure. However, there are medications, therapies, and support systems that can improve quality of life and slow progression. Research is ongoing, and we are committed to keeping you informed about new developments.
Life expectancy with MND varies greatly. While some individuals may live only a few years, others continue for much longer-especially with early intervention, assistive technologies, and a strong care system. MND can be managed like many other chronic conditions. What truly makes a difference is the patient’s willpower, emotional resilience, and the love, patience, and dedication of family members. Together, this support can help maintain dignity, comfort, and connection throughout the journey.
Early signs may include:Weakened grip or difficulty holding objectsFrequent tripping or stumblingChanges in speech or slurred speechDifficulty swallowingPersistent cramps, stiffness, or muscle twitching
There is no fixed life expectancy with MND. Some people live only a few years, while others live. Although there is currently no cure for MND, several therapies and interventions can provide significant support. Physiotherapy helps maintain mobility and strength, while respiratory support can ease breathing difficulties. Speech and communication aids allow patients to stay connected with others, and nutritional planning combined with swallowing therapy ensures proper nourishment. Additionally, mobility equipment plays a vital role in preserving independence and improving overall quality of life.e much longer. Quality of life and supportive care play an important role in survival and wellbeing.
MND can look similar to other conditions. There's no single test for it, so doctors must rule out other causes. This careful process helps avoid misdiagnosis. While the ‘wait and watch’ period can be stressful, it’s part of making sure you get the right care.
We completely understand the strong desire to try every possible option when facing a diagnosis like MND. It's a very human response-and it comes from a place of hope. However, please be cautious when exploring alternative or herbal remedies. Many of these are not backed by scientific research, and some may actually harm your gut health. For individuals with reduced mobility, any digestive issues can quickly lead to serious complications, such as poor nutrition, discomfort, and risk of infection.You may come across online claims-especially on platforms like Facebook-about herbal cures from certain doctors in other countries who claim to have reversed MND. These stories are not true. If such a breakthrough had really occurred, it would have been globally recognized by the medical community and published in scientific journals. In fact, it would likely have won the Nobel Prize.We urge you to speak with your neurologist before trying any alternative therapy. Your health and safety must come first, and our team is here to support you in making informed choices. Maintaining gut health through a well-balanced diet is essential. We recommend small, frequent meals-about 4 to 5 times a day. Include leafy vegetables, seasonal fruits, dry fruits, and whole grains in your diet. Since there is no medicine currently known to stop or reverse MND, food becomes medicine-offering natural nutrients in easily digestible form, helping sustain strength and overall well-being.
MND can gradually affect speech, making it harder to express thoughts verbally. We strongly encourage early voice banking-a process where you record your natural voice while it’s still strong. This allows assistive devices to later replicate your unique voice for communication.We also recommend using communication boards, speech-generating devices, and practicing speech therapy to maintain your ability to connect with loved ones.In addition to medical tools, simple practices like pranayama (deep breathing exercises) can support lung and vocal muscle strength. You can refer to YouTube for some useful tips. Even chanting or vocalizing sounds-as loudly and clearly as you're able, for a few minutes daily-may help preserve control over the muscles around the vocal cords. You can do this for at least an hour a day, or whenever it feels comfortable. The goal is not just to preserve speech, but to ensure that your voice-your presence-is heard and felt.
As MND progresses, swallowing can become challenging. Switching to soft, blended, or pureed foods can make eating safer and more comfortable. A trained nutritionist can help you maintain a balanced diet and ensure you're still getting all the necessary nutrients to stay strong.In some cases, when oral intake becomes insufficient or unsafe, feeding tubes may be considered. One of the most recommended methods is PEG (Percutaneous Endoscopic Gastrostomy) tube insertion. This procedure is generally safe and minimally invasive-but it’s best done early, when your overall health is still stable enough to tolerate a short surgical procedure.
Although there is currently no cure for MND, several therapies and interventions can provide significant support. Physiotherapy helps maintain mobility and strength, while respiratory support can ease breathing difficulties. Speech and communication aids allow patients to stay connected with others, and nutritional planning combined with swallowing therapy ensures proper nourishment. Additionally, mobility equipment plays a vital role in preserving independence and improving overall quality of life.
