Receiving a diagnosis of Motor Neuron Disease (MND) can be overwhelming. It's natural to feel a range of emotions, from shock to uncertainty about the future. Understanding the disease and planning ahead can help in managing this challenging time.
Consult Before Equipment Purchases:
Occupational Therapists can assess needs and recommend appropriate devices and home modifications.
Plan Your Finances:
Speak with a financial advisor about insurance, benefits, and arrangements for a trusted person to manage accounts if needed.
Document Questions and Contacts:
Keep a record of questions and important contacts to stay organized during healthcare appointments.
Understand Available Treatments:
Learn about treatment options and clinical trials to make informed decisions when needed.
Sharing your diagnosis with family and friends is personal. Consider these tips:
Be Direct and Honest:
Explain what MND is, that it progresses over time, and currently has no cure. Reassure them that the diagnosis doesn't change who you are.
Manage Emotions:
Decide how to handle emotions during the conversation. Expressing feelings can foster understanding and support.
The diagnosis of MND can be overwhelming. Once you have the diagnosis, it might be difficult to know where to begin.
