After a successful run last year, we are back again with our two-day International Conference (on-site and online) dedicated to ALS and MND research.
On Global MND/ALS Awareness Day, we are bringing together practicing neurologists (MND clinicians) and researchers worldwide to share a new understanding of MND/ALS.
We are proud to identify eminent speakers, some of whom are on the threshold of finding a cure for this disease. Topics covered will range from the latest approaches in diagnoses, treatment, and management of MND.
About the Event
Held over the 21st and 22nd of June, 2023 on-site at NIMHANS Bangalore with additional virtual sessions, this event has been conceived around the theme “Breaking Barriers in the Treatment of MND/ALS”. With this conference, we hope to:
• Foster strong collaboration between clinicians, pharma companies, and leading researchers from around the globe
• Share a new understanding of the disease in a structured collaborative environment
• Promote backing through funding organizations
• Aid drug discovery
Join live streaming of the conference by clicking the links below:
Registration Criteria
1. Subject to KMC regulations, “Three – Hours” of Accreditation will be awarded for this “Two- Day” conference to those who have registered 5 days before the start of the conference.
2. As per KMC guidelines spot registration will not be considered for CME Credit points.
3. Registration is free to all attendees and starts on 25th May 2023.
You can find the detailed list of topics below.
Sponsors
Topics, Key Speakers and Programmes
DAY 1 : June 21, 2023
Welcome, Inauguration Speech,
Presidential Address and Guest of Honour Address
Vasanth Rao UA
Founder Trustee, Dr. Shyama Narang Foundation
T.K. Anil Kumar, IAS
Principal Secretary to Govt.
Health & Family Welfare Dept., Karnataka
Health & Family Welfare Dept., Karnataka
Dr. Pratima Shetty
Director, NIMHANS, Bengaluru
Dr. Giridhar Gyani
Director General,
Association of Healthcare Providers (India)
N. Sivasailam
IAS (retd.) Administrative Member, Karnataka State Administrative Tribunal
Scientific Programme: Eminent Speakers
Dr. Rajani Bhat
Internal Medicine, Pulmonologist, Sparsh Hospital, Bengaluru
Respiratory Involvement & Symptoms management in MND
Dr. Roop Gursahani
Consultant Neurologist, PJ Hinduja Hospital, Mumbai
Palliative Care in ALS
Dr. Suvarna Alladi
Prof. and Head of Neurology NIMHANS, Bengaluru
Cognitive and behavioral changes in MND
Dr. Gustavo Zubieta
Head, High Altitude Pulmonary
Pathology Institute, La Paz, Bolivia
Can Exposure to hypoxia and chronic hypoxia be beneficial in MND
Dr. Corrado Angelini
Former Director, Neurology University of Padova, Italy
Virtual Talk: ALS and SMA Treatable Bioenergetic Prospective
Topics, Key Speakers and Programmes
DAY 2 : June 22, 2023
Scientific Programme: Eminent Speakers
Dr. TR Raju
Director – Research, Sankara Academy of Vision,
Bengaluru
Bengaluru
Motor Neuron Disease Pathogenesis – Does CSF hold clues?
Dr. Gautham Arunachal Udupi
Associate Professor, Dept. of Human Genetics, NIMHANS,
Bengaluru
Bengaluru
Genetic spectrum of Motor Neuron Disease: Indian scenario
Dr. Harsha Rajasimha
Founder & Executive Chairman,
Indo US Organisation
for Rare Diseases
for Rare Diseases
Urgent need for a National Registry for Rare Diseases and the creation of a common platform for patients
Panel Discussion
Panel with leading MND/ALS Scientists and Researchers
Moderator for Panel Discussion
Prof. Thomas Mathew
Prof. and Head, Department of Neurology
St John’s Medical College Hospital, Bengaluru
St John’s Medical College Hospital, Bengaluru
—————— Panelists ———————-
Scientific Programme: Eminent Speakers
Dr. Pamela Shaw
Prof Neurology, University of Sheffield,
UK
UK
Virtual Talk: Recent Advances in Motor Neuron Disease and its therapeutics
Dr. Vamshi Krishna Thamtam
Head – Genomics, Dr. Lal Pathlabs,
New Delhi
New Delhi
Genetic Testing in Spinal Muscular Atrophy
Dr. Jochen Weishaupt
Neurologist and Head of the Division for Neurodegeneration, University Medicine and Medical Faculty Mannheim, Heidelberg University, Germany
Virtual Talk: ALS Genetics and the design of respective therapies
Closing Vote of Thanks
Dr. Thuppil Venkatesh
CEO, Foundation for Quality (India)
About NIMHANS
The National Institute of Mental Health and Neuro Sciences (NIMHANS) is an Institute of National Importance (INI) and is recognized for its multidisciplinary approach for patient care and academic pursuit in the field of Mental Health and Neurosciences.
NIMHANS has been at the forefront in the care of patients with neuromuscular disorders and has catered to the care of such patients for nearly 50 years. Prof. Dr. Gourie-Devi was a pioneer in the evaluation and treatment of patients with neuromuscular disorders, especially MND / ALS and has contributed immensely to MND research. Her efforts were carried forward by Prof. Dr. A Nalini who leads the neuromuscular team of NIMHANS. She maintains the hospital MND registry and has more than 3500 cases registered since 1976. The neuromuscular team of NIMHANS caters to the care of at least 20-30 patients of MND every month and multidisciplinary, holistic treatment is provided to each one of them.
Abundant experimental work is done on MND at NIMHANS in collaboration with other departments and renowned international faculty to find a cause for this deadly disease. Advanced research is being done in NIMHANS on genetics, biomarkers and stem cells in ALS.
NIMHANS has also pioneered palliative care of patients with neurodegenerative disorders, especially MND. The unmet needs of these patients and family are identified, home visits are carried out, psychosocial support is provided, and the best possible multidisciplinary care is provided to the patients. NIMHANS is now recognized as an Advanced Center for Neuromuscular Disorders (NACNMD) and hopes to soon be recognized as a “Center of Excellence for Research in ALS / MND” its treatment and research under the relentless efforts of the neuromuscular team, led by Prof. Nalini.
Click here to find out more about NIMHANS.
About Dr. Shyama Narang Foundation
The MND Trust formed under Dr. Shyama Narang Foundation, is a Registered Trust formed to raise awareness of Motor Neuron Disease and its impact on the community. Dr. Shyama Narang, a medical doctor, MD (OBG) was diagnosed with MND during 2015 and during her lifetime she strived to maintain her independence and enhanced her quality of life. Despite all odds, during her lifetime she wanted to form a foundation to inculcate the same passion for living. Unfortunately, fate had other plans for her, and she breathed her last on 2nd September 2019.
In the last couple of months, we have been providing practical assistance to people with MND through physical and emotional support through a panel of doctors under
various systems of medicine and through trained counsellors. The Trust seeks community support for the MND warriors, and we know you are there with us.
Click here for more about Dr. Shyama Narang Foundation
Supported by:
Dr. Bhargavi BM
Chief Coordinator
Contact :
+91 9845033694 / 8867708800
dr.bhargavi@mndtrust.co.in
www.mndtrust.co.in
Dr. Alexander Thomas | President, AHPI
